This story is about someone who believes that his child can be healthy when he will be ready.
The days are counted for our child, which was born on the 30th of November 2004; he is very ill and we found out that he has a severe malformation of the heart (tetralogy of Fallot – we found out about this disease after a year and a few months after he war born) and then, when he was four years and a half, that he has a autism spectrum disorder. Meanwhile, we tried to get the little one to a surgery in Târgu Mureș (because it was recommended to us) and we are borrowing money every were we can, with the hope that, after all the investigations, our child will have the surgery and everything will be fine. But we are being reprogrammed, delayed; we managed to get him hospitalized once, but when they saw that he has an autism spectrum disorder, we were postponed again, with the excuse that the child is not cooperative (he is not talking, he can’t go to sleep very easy etc.) and that we have to treat this disabilities first.
Meanwhile we found out that the child needs to get the surgery first and the time it’s critical, because after the age of 6-7, if you don’t do therapy for autism, the recovery it’s almost impossible. Our financial situation is very bad, because we borrowed money everywhere- in banks, with all our friends, and my job as a pharmacist assistant is on stand-by because I am in maternity leave for 6 years to take care of my son. What I am saying is that we are common people and this unfortunate situation has found us in the position of not having the amount of money that could save Călin’s life!
I would like to mention that our son, even though he is not talking, he seems to understand us very good and he is very sensitive, he sees the world through the affective side- through emotions, feelings, tones and even words, he likes the computer and mobile phones very much and he is good at its.
His heart disease is manifested by a lack of oxygen in his entire body, therefore, any activity that he has – walking, eating, playing, defecation needs a great effort from him and we try to decrease this effort. Thus all the habitual things for us are breath-taking for our son, skipping so many other consequences that come with the lack of oxygen. His life expectancy without the surgery is between 7 to 16 years, not including the autism spectrum disorder.
There is a prayer that says: “God, just give me strength to accept what cannot be changed, help me, God to change what I can, and, most of all, give me the wisdom to make a difference between these two.”
That’s why we are asking for your help, soul to soul, because we don’t want to end up in the situation of not being able to change what we can’t change; we have to try, because there is no other way! I want my child to live!
I wish that all the good you make shall come back to you as well!
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